Our Research
Many families encounter significant barriers when trying to access recommended educational and healthcare services for their children with developmental delays and disabilities. Through close partnership with families, this study seeks to identify solutions that improve access and ensure all children receive the support they need to thrive. This three-year longitudinal cohort study involves five survey time points—at baseline, 6, 12, 24, and 36 months. Surveys explore families’ experiences navigating and obtaining school- and clinic-based services for their children. To date, we have enrolled one-third of our target sample and aim to complete recruitment by April, 2026.
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Limited coordination between medical and educational systems creates significant barriers for families seeking recommended school-based services for their children. Our study aims to address this gap by fostering collaboration between healthcare and education sectors to better support preschool-aged children with diverse developmental needs. The goal is to increase access to educational and therapeutic services that promote developmental skills and improve health outcomes for both children and their families.
This randomized wait list-controlled trial includes four assessment points over a 12-month period. Participants are randomly assigned to either the immediate intervention group or a wait list control group, with the latter receiving the intervention after a six-month delay. Families assigned to the intervention group receive support from a volunteer undergrad patient navigator who assists them in accessing school-based services for their child. Outcomes of interest include service access, child developmental progress, and the psycho-social well-being of families.
To date, we have enrolled 92% of our recruitment target and anticipate completing enrollment by the end of Fall 2025.
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